Trivia Day is Here!

Below are the five (5) trivia questions about Biliary Atresia and Liver Transplantation. The winner of the trivia contest will receive a free autographed hardcover of Angel Donor as well as a PDF version.

To participate, answer the trivia questions below correctly and in the correct order in a single comment to the blog. The first person to do so will be our winner! Good Luck!

Trivia Questions:

  1. What is the name of the disease of the bile ducts in infants where the bile ducts become inflamed or blocked, causing restricted bile flow and damage to the liver?
  2. Name two symptoms of the disease referenced above.
  3. How many children under the age of 18 are on the national transplant waiting list?
  4. How can you register to be an organ donor?
  5. The main character in Angel Donor was born with the disease referenced in question 1. How many babies are born each year with this same disease? For example: 1 out of every hundred births, etc.

Resources:

AMERICAN LIVER FOUNDATION

DONATE LIFE

Liver Disease

Cover Reveal Trivia Details!

In just eleven days, (May 4, 2021) my pre-order campaign for Angel Donor will go live on Kickstarter. In order to celebrate and share the excitement, I’ve decided to do a cover reveal TOMORROW April 24, 2021. There will be 5 easy trivia questions posted at 1:00 PM EST.

Even more importantly, tomorrow is the LAST DAY of Pediatric Transplant Week! Every year Donate Life America dedicates the last full week in April, (Also called Donate Life Month) to Pediatric transplantation. This special event honors donor/donor families and shares patient stories to bring awareness of the great need for organ transplants in children.

To participate follow the instructions below:

  1. Check the blog TOMORROW at 1:00 PM EST
  2. There will be five (5) simple trivia questions about Biliary Atresia and liver transplantation in children.
  3. Comment your answers in order of the questions in ONE comment.
  4. The first commenter to answer all the questions correctly, in order, will win a FREE autographed hardcover as well as a FREE PDF download of Angel Donor.

That’s it! The comment with the correct answers, after they have been checked, will unlock the BRAND NEW cover!

Be ready for a whole new look. In addition to the story being illustrated by the amazing illustrator Samantha Bell, I’ve also worked with the talented graphic designer, Helen Barrios. While there was a previously published edition of Angel Donor, Helen helped transform this new edition into a completely new book while holding on to the heart of the story.

Head on over to Angel Donor Book to get a preview of the Kickstarter campaign. You can also get a notification on when it goes live by clicking on the green bar.

Preparing Angel Donor’s Second Edition

Eighteen years ago my second child was born. But she was a very unique baby. She was born with Biliary Atresia. It’s amazing how a term you don’t even know exists can change your life forever.

Biliary Atresia is a liver disease where the liver’s bile ducts are too narrow or closed completely. It doesn’t allow the liver to do its job. Many times, a liver transplant is needed to save the person’s life. That was Jackie’s case.

When we were preparing for her transplant, even though she was little, I was looking for a picture book to help her prepare for it. I knew it was a complicated subject, but I wanted something that would help with the conversation.

I found a few books here and there, but nothing that would walk a child through the main parts of the process. I also wanted the right balance of information without being too scary. That’s when I knew I needed to write one of my own.

When I explained what was going to happen to her, Jackie is the one who called her donor an “Angel Donor,” which is now the title of the book.

Unfortunately, once COVID hit, my publisher was hit hard and had to shut down. However, I know that to this day families struggle with this disease and with this situation. I knew Angel Donor should not disappear. Now,, I’m planning to publish a second edition independently. The awesome and super amazing illustrator, Samantha Bell, worked with me to ensure we could reuse the illustrations.

In order to make this a reality, I’m gauging interest, I’ve created a group on Facebook. There, I will be bouncing ideas off members, get feedback for the project I’m working on, and the members get to be a part of the process.

A Special Anniversary!

I usually don’t like to post personal information, but I can’t help it this time. This is a wonderful anniversary for my middle child. Jackie was born with a rare liver disease. At age 10 months and then at age 3 she had a liver transplant. Today is the 3rd anniversary of her second and successful transplant. To read about her story visit www.caringbridge.org/page/jacqueline . The journals are more about her battle with the disease and tapered off as she got well. Today, we also remember her donor and the brave decision the family made to save a life.